Rare aid

Publicly available short description of the project (no more than 100 words) As a pioneer in bringing orphan drugs to the Russian market, Pharmimex was able to introduce a unique online education system for doctors on orphan diseases, integrated into the state system for improving their qualifications. The Help for the Rare Portal is an entire eco-system that brings together all stakeholders in helping patients. Doctors are trained there in orphan diseases, receiving points for this in the structure of continuing medical education (CME). Patients and their families can take advantage of a simple help navigator and legal support. Pharmaceutical manufacturers can talk about their drugs. And it is easy for NGOs to organize fundraising through the crowdfunding platform on the portal.